3 0 obj I had very little support from the Medtronic rep for either the trial or now. I’ve had the Interstim for 24 days. I was going 2-3 times for as little as 3 oz of liquid. Legal or not? It changed my life here, the only problem I currently have is that it is starting to becoming irritating because the battery is so low now and not working properly. I’m frustrated and disappointed. They also performed scar tissue removal from the other surgeries. Linda Sullivan I have interstim on both sides, the surgery was in june 2014. the vaginal pain was intense for months, but did not know that they could cause this pain. Like many, my hip kills me most of the time and it consequently causes a lot of lower back pain. Think I am gonna go back soon to have it taken out. The Dr. said it’s better to just leave it in. I cannot exercise sit, stretch, do yoga or anything without pain in my hip radiating from the implant site. My partner has sns re-sited recently due to the wires been in the wrong place. I’ve turned the device higher and off. That is no big deal. What I remember is that I had to go to bathroom so many times during the night and was having numerous bowel accidents a week. I am slender so sometimes it is noticeable through clothing…but no one should be looking at my buttocks anyways! No pain. 4 0 obj For the last week I’ve had a burning and pinching pain starting at the lead incision site and about 4 inches going down my right buttock when I sit in my car or on a sofa with numbness in my foot and or leg. The bladdee stim trial is scheduled in 2 weeks. February 25th, 2016 at 1:17 am. have tried strong painkiller but don’t really suit, side effects awful and I rather not take them. But what about in the real world? Got overactive bladder so bad was in hospital Xmas time could not stop peeing on tablets help a bit is this device any good for it. It’s very confusing. *Smile*, Joseph Battaglia Stress incontinence, which is helped by pessary, tampon, sling surgery, etc, and urge incontinence, which can be helped by interstim, medication, Botox, etc. Is there anyone who has had a positive experience? Christine Adams Are there any others who have found at least some continued relief? December 30th, 2015 at 6:09 pm, Anyone on here had the implant for constipation? continual low back pain started around week 3 after implant. Is this normal please. Surgeon said he has never had a patient where it’s rotated twice. I’m a strong woman, stage 4 cancer, never missed a day of work with radiation, chemo. A bit over three weeks ago, I spontaneously began having excruciating pain in my right groin when I attempted to walk. It did stop leakage but really did nothing for my overall problems. I think I have enough pain and problems without adding more. 5 hours most nights. My next step is this Interstim, i’m very nervous about this. It took me 2hr.s in pre-op to decide . After 8 hours of being there and several test including a CAT Scan. It was embedded, tines deployed into the nerve itself causing the nerves down my leg and hip to fire constantly. I think Meditronic the manufacturer of the interstim device makes these leads that are proned to fracturing and have been recalled many times ? I got my interstim in February and have had pain in my hip at the location of the implant ever since the surgery. September 24th, 2017 at 4:06 pm. This past weekend was the first where I could turn from side to side without any major pain. Upon seeing me for a consultation before the surgery he called a Medtronic’s representative (Matt) who tried to reprogram the device, wherein I was shocked again and was told that it was a general consensus that I have the device removed. 2 0 obj I tell her no, it’s not working. I , only had my interstiem only for a couple months. I agreed but left very unhappy. I think it depends on the Dr. that you have do your surgery. June of 2017, I had had several serious UTIs and in July 2017 so severe that I ended up in emergency room with UTI that cultured ESBL. Scheduled for Interstim phase 1 install Sep. 4th, but quite apprehensive. but now at almost 5 years… the thing turns itself off… and has also turned itself on. Two days ago the pain became severe. Has anyone else suffered Los of appetite and severe weight loss. Not workiing and surgery has been very painful….not working either…so definitely coming out Monday…called and told my Dr. TAKE IT OUT OFF WHATEVER!!!!!! Very dissapointed in the whole process. She put some cold water on some rough paper towel and said,”sorry for the cold water”. It is causing so much pain around my buttock, all around my back and down my whole leg and into the foot, going to have to turn it off I think. My doctor recommended the Interstim Implant as I have an under-active bladder and i completed (Stage 1) on June 23rd. I make it to work and home by catheterizing. I’ve read every comment on this blog and the post from Karen Leigh is most likely my situation. March 29th, 2016 at 4:58 pm, Just had my implant re positioned after flipping over & sticking out of my buttock causing pain. but having exrays before appointment. Have severe fecal incontinence. I’m just in the first stage and I did have the problem abdominal distention (stomach sticking out and hard). Spotlighted Blogger: Bipolar patient Andrea of “Lithium and Lamictal”. Sometimes more then others times. I have had the Interstem put in a year ago without good results. March 5th, 2018 at 10:22 am, Has anyone else had balance issues and loss of core muscles? Switched Dr.s. h� �)��n�%MY�P��@J�RR@��n^�>��kO�s������F�F� 9V'�� I> �gT�P@#��JACq�_��B�$FP�K��a���3@?�7�+3{���l7�������o���O������R�nI�*#��ӭ������J5�:׳��a��"��'PS*��?ͅ�k�'���\�O0�wsQ�����:��+�n�q�V����7?���T�,$9K.` �P��y��4��-��@.����,i�1Z+F4���8��Gx��s �����O�U����/��e��d���+��y\���gY�=?Z���4�dSZI�pz ʖڦE��c�)H#Б���F�,N�|�c�k��a�8�u�K�/N���L�0�O‰�!�,�"��K�D4�i���q�P%qul�@%qu�O�������� �Liwˉ�ʆ��� �w��3���ʚ�a�F�+VI��gF[�6-ި!�`��8}�*5�~��i0"1��y�CP"�9�\Sjz�:3�s�TUӴ1F����9���%%���&�6gTGJ����B�%eO*U��RGy+���MQ�v\�w\dє�=‡pEaÒ�Tx�dx�Cµ�N�.���PI�đ(�P��a+�@����P�*�r�~�QT�c�1�FG��1�?���F����˹�-�皍�B�RM�A�p �(ak�7��E94 �qY����lj����GL. Will my first urologist do this for me? Sacral Neuromodulation fits the bill, in that regard, for a lot of patients. Can anyone else shed light on this if you have had Ulcerative Colitis/ or Crohns and underwent removal of colon…? Praying you all find something to help your problems. I was in dire need since I could barely make it out of the house due to urgency. I have trouble sitting for long periods of time because of the pain. I am 69 yrs old in good health, and worried. Aside from the surgery pain and the seizure I endured, I would have it implanted again.”, “Taking the InterStim was an act of desperation. 12 Minute Payday Sign In My doctor thinks it’s the interstim device implanted almost at the exact spot where I’m having the back pain. Never hve had trouble before. I do use catheters for all bladder emptying. Reading this is giving me hope that the stim itself is the problem. I have been reading more, and more about leg pain and nerve damage. So went to have an Outpatient procedure done, Cycstoscope and Hydrodistention. LindaTurner Now I have had to modify for leaking, (along with a back injury) I cant run, it causes horrible spasms.. I’m on faze 1. I turn the stimulator completely off because I was in pain. I am 8 weeks after surgery and my device hasnt worked since put in place, had an xray last week and the wire has bent and moved so having to go through the surgery again. It was always hard, bulky and painful to extricate. Shortly after getting it and the incision healed, I still had issues with pain. I do not have a stomach virus and have been eating my regular meals…meat, potatoes, mac & Cheese, etc. After I read all the horrible things that have happened to all of you I have to admit I am scared for the future, I have many people praying for me so hopefully I will be one of the lucky ones. I can feel the battery under my skin. Am I right it took two weeks last time when it was first put in to settle down & the pain to go? I am back at the hospital for my post op check and hoping to get some advice on the leg pain to see if this is normal. my life changed. Thanks, Karen Leigh Lanette Thurman I sleep on the side the implant is but do not seem to have any discomfort. I am 1 week post permanent implant for fecal and urinary incontinence. I have been very happy. I am sorry this has not worked for so many of you. Medtronic rep said to do so 24/7 . I am 50 years old and had the Medtronic Interstium Bladder device permanently implanted in May 2014. Most the time I don’t know it’s there. Hello Kimberly, Feel like I just want it taking out its so sore. The lead on the left side is frayed and the right side is in the wrong place therefore they both have to be replaced. Amazing! Also being young and active helps too. Thank you. I had no problems at all from the surgery as I had a General Anaesthetic on both occasions, from now on I can now move forward it is ABSOLUTELY AMAZING I would like to Thank everyone involved for everything that has been done to give me back my quality of life. I still have accidents which is frustrating but there is hope because it’s cut in half. The lead broke off during surgery. When I go and do a urinalysis, it always comes back with no infection.. I’ve been living in Azoing and Cipro.. I’ve tried changing programs and yesterday I was walking around the house holding my bladder… I finally turned it off and I want to see how I get along without it on.. Since 2002 (8) total. My recovery could take an additional number of years. What’s up, this weekend is nice in favor of me, because this occasion i am reading this impressive educational post here at my house. I had it put in for Bowel incontinence and was told it would help my bladder incontinence also. Prior to this accident I was a runner (approx 30 miles a week) as well as doing Crossfit, and yoga. All Rights Reserved. I did have the swelling in my stomach and hardness. I had the interstim implanted Mar 2016, then Nov 2016 I had the revision surgery to make the pocket deeper. My doctor now wants to switch the Interstim on the opposite side to see if it will work. A little scared due to the fact I am having someone that I have not been to very often do the surgery. I’m lucky so far. Afraid to leave it in as the pain is so bad. I am having my regular Dr an internist do some work up on me now and try to find out what is going on. I just keep ordering bundles of the ultimate supreme pads in addition to keeping my dry cleaner in business. I asked her what exactly is this thing supposed to do? October 17th, 2013 at 1:59 pm. Its really embarrassing to have to use diapers to keep from humiliating yourself at work or even at home. However, my Dr. did say the percent of success goes down for us since we do not have a colon. I have had my device since August of 2010 and have had to have my battery replaced (because it ran down) once). What setting did anyone else have it at? You are courageous and amazing human beings, hang in there. MRI after MRI every dr. hid the truth. The consultants having a meeting on Monday to decided on next step for me. I decided I had nothing to loose She explained to me the longer you leave the device in the larger the risk of it breaking off? Hello, I feel a great weight has been lifted from my shoulders as I now can do a lot of things that I couldn’t do before like making LOVE to my partner because before I had this device every time that I had a erection the pain was so intense which became unbearable, also when I went to the toilet to void very little would come out I would go to the toilet at least 15 times every night and even more during the day, I was so restricted as it was so very hard for me to even go out as on many occasions I even wet my self which became so very embarrassing for me. I am so worried. I felt like I was dying. I had the interstem surgery on 08 March 2013 in Grand Rapids Mi.. My trial period things went great. Is anyone getting Botox shots and use the interstim implant? After adjusting the settings he had a medtronics representative to call me and they both agree that I should try it 24 hours and call them back the next day. All looked great according to her. I have had it for 8 years. I was also diagnosed with IC at the same time. The second stim was put in Juneof 2014 it worked for a little while but now i am experiencing severe hip pain that goes into my leg around to my back and no adjustment is helping my bladder have to urinate all the time cant hardly walk or sit without severe pain and increase in stimulator causes inplant to buzz around in hip. Is 24 hours too soon to see a difference? all the time it like every 4 to 6 mos I am getting them, violinista electrico Just grateful I am no longer in pain from retention and not having to Cath numerous times a day. Tourette syndrome is a complex neurological disorder that is characterized by repetitive, sudden, uncontrolled (involuntary) movements and sounds (vocalizations) called tics. August 20th, 2018 at 9:02 pm. starting to not leak but pour out. I have damaged and ended relationships over this… starting with my husband. She tells me it should stop the sensation of any urgency I feel. The InterStim has stopped annoying frequency of urination, however, it has retained urine to the point where there is no urge to go until all at once there is a deluge that is uncontrollable. I am hearing a lot of side effects and just not sure if its worth going through another procedure?? I also have horrible pain in my stomach and back, I have been up for days now due to my pain. Surgery to remove poison, perforated bowel, removal of mass found while exploring, and restructive surgery left me more incontinent and increased my bowel accidents. June 22nd, 2018 at 5:27 am. I had a question if someone could answer. I had this interstim device operation last November and I was disappointed from the start. January 18th, 2019 at 10:27 am, I am having interstim fitted on Thursday for my bowel after reading your comments l am concerned l have been ill last last few months uti so has been cancelled have been on a long team antibiotic to get me ready l am not a well person is this really going to improve things l feel pressure to have it done thankyou, Lee Prothero The pain at the sacrum went away after about six month. I had my interstitial trial, Thursday, Feb 4, 2016. I woke up during surgery when they were on the nerve. So fortunately they did agree and put me on oral medication. I was so excited about it….UNTIL I GOT SHOCKED !!!! I had radiation & memo in 2010 . Pain in the site is miserable. February 13th, 2016 at 2:56 pm. Four days ago I had knee replacement surgery on my left knee. The answer is no change. It seems to me that is what cause my neurogenic bladder and bowels. Store between 900-1400 mg of urine. as she instructed made no difference. Now after my implant, I am experiencing the serious incision site and lower back pain. I saw the surgeon for my four week check, told him my results and was told by him it was stress incontinence and that the wire is in the same place the test wire was. I have had to adjust the settings here and there, but have had few problems. so far so good. I’m writing to give another view of what it’s like to have this procedure done because there are a lot of complaints on this site. I had a different doctor remove the implant and battery last week and was warned the lead could break off in the sacrum during the removal process. The doctor and Rep acted like I was ‘making up stories’ and said they had NEVER seen this happen before. My doctor said a wire could be loose but no one checked it. I believe some doctors know what they are doing and others don’t. After seeing four neurosurgeons I found one who said he could help me. Or is it? I am having surgery May 4th to replace the one I currently have as the battery is dying. November 25th, 2015 at 7:18 pm. don’t feel much of the pulsing. The most alarming thing is the loss of appetite and weight lose 12.4kg since the end of November. I lost friends because I could not do anything without having to go to the bathroom. I can sleep I know its early in the process, but I already have freedom from the bathroom, before you leave to go somewhere, to using it every place I go, I went shopping just walking around I DID NOT use one bathroom, no accidents and I was out for 5 hours, that never never happens. thanks for providing these kinds of information. I thought I was in a Heaven with all the sleep. I am really confused as to whether or not I want to do this after reading all the reviews on leg pain and pain at the site of the implant. It is thought that is why I have had oab. Now with less pain. The dr did say some people are more sensitive and nerves can be tricky but to call right away and they will help fine tune as needed. The anxiety and depression is getting so bad…. I’m wondering how much pain it’s going to be?? I have not been completely accident free as I was told that would pass it has not. <>/Metadata 411 0 R/ViewerPreferences 412 0 R>> _____! Then I plan to contact the urologist to have the implant removed. Shane Grimes
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